Black Blood Heals
The Black Blood Heals Podcast explores the stories of heroic Black donors who have saved lives and Black patients in need of life-saving stem cell and bone marrow transplants. Hear from Black doctors about disparities in healthcare affecting the Black community and learn how you can take action to save a life and change outcomes for patients battling blood cancer, sickle cell disease and other life-threatening diseases.
Black Blood Heals
Advocacy for Stem Cell Research with Be The Match
Welcome back to Black Blood Heals with your host, Tamara Weston. This week Tamara is joined by Jocelyn Thompson, an advocacy specialist with Be The Match. In this episode you’ll get a chance to learn more about the government relationships that Be The Match has formed with local and federal lawmakers, and why those relationships are so important for protecting donor’s rights and furthering the research needed to save lives.
The story of Henrietta Lacks has been shared time and time again in regards to medical research, her cancer cells, which were taken without her consent have raised important ethical questions about medical research and patient rights. Today Be The Match works with advocates and lawmakers around the country to ensure the safety and ethical treatment of both donors and recipients.
Tune in to learn more about some of the ways that Jocelyn and her team are working with lawmakers to fund research projects and help provide donors with job protection if they need to take time away from work to donate. Visit https://bethematch.org/advocacy to become a digital advocate and to learn more about how you can help Jocelyn and her team work directly with lawmakers to make a real difference in your community. Because it will take all of us to save one of us.
Get Involved
- Join the Donor Registry: https://bit.ly/3UGiU1S
- Visit NMDP for resources: https://bit.ly/48moDxd
Black Blood Heals is produced by Adode Media www.adodemedia.com
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