Everyone Dies (Every1Dies)
A thoughtful exploration of everything about life-limiting illness, dying, and death. Everyone Dies is a nonprofit organization with the goal to educate the public about the processes associated with dying and death, empower regarding options and evidence-based information to help them guide their care, normalize dying, and reinforce that even though everyone dies, first we live, and that every day we are alive is a gift.
Everyone Dies (Every1Dies)
How to Talk About End of Life with Someone That Has an Intellectual or Learning Disability
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We explore the health disparities and what you can do to help for those with a learning disability, especially related to palliative and end of life care.
This week we are exploring the topic of having and terminal illness and how to get the information needed if you have a learning disability. Having a learning disability, or even several disabilities, isn’t related to intelligence. It just means that the person’s brain works differently from others. Be sure to see the resource links in show notes.
People with intellectual and learning disabilities are now living significantly longer than in previous generations. They not only face the same age-related health and social care needs as anyone, but they also have specific challenges due to their learning disability. They may also be left out of important activities such as a loved one’s funeral. Learn more about the challenges and how to support those with intellectual/learning disabilities, especially surrounding death and the end of life.
In this Episode:
- 02:13 – Recipe of the Week: Cheesecake Fruit Salad
- 04:26 – Dying Stars
- 12:56 – Learning Disability and End of Life
- 28:20 – “Is it ‘selfish’ to ask dying husband to hold on a little longer?” – Advice from Washington Post
Connect with Us:
- Email our Host: mail@every1dies.org
- Website: https://every1dies.org: Find show notes, links and expanded resources